Our association is present on Facebook with a group (click here) and with a page (click here)

The group is a "closed" one. It means that everyone can read the group descripion but only members can access content and can write comments. If you want to join us please clik on the "join" button to ask to become a member. We will examine your request and accept you, if we think that you have good reason to stay with us.

Our official language is the english language, because most of the families that are involved with this disease are not italian. English is somehow an universal language. That's why we really appreciate if every comment will be written using english language.